It’s been a low key summer. Things are still going well, fingers crossed and knock on wood. Fallon really seems to feel greyt. She is happy, and has lots of energy. She has continued on the metronomic chemotherapy and is tolerating it well. We’re only seeing Dr. Sue every other month now! We miss her, […]
We got to Dewey Beach yesterday, but it was rainy when we arrived, so we didn’t make it to the beach. Today is a GREYT day for the beach, sunny, but a bit cool. Paul carried Fallon a lot of the way there. It’s only a block from our hotel, but we wanted her to […]
So, we’re working this new normal. I’m still trying to figure things out, trying to make things better, trying to be efficient—but not in our prior “everything is a crisis” mode—all the time, anyway. I used to blog here every day, sometimes twice a day once I started, as there was so much to communicate. […]
We’re out to beat the odds. I am all over this. So much has been happening. Fallon has been doing GREYT, and we’re working hard to keep it that way. My focus is making this new normal run smoothly, and it gets better all the time. There are many elements to this, but it’s all […]
It’s been 100 days since it was confirmed that Fallon had a bone tumor…85 days that Fallon has been Tripawd. We’ve come a long, long way. I forget what life was like before. What did I do all day? These days are structured around Fallon, but nothing like the first month or two. That new […]
"You're not going anywhere until we get more."
